Thursday, September 4, 2014

The Roller Coaster of Life

  Okay, so it's been awhile since I've sat in front of a computer screen and typed out a post. I apologize for that life is a crazy thing and time gets hard to manage. Especially when you are trying to hold down a part time job, see 5 different doctors, give your friends some attention, and take care of yourself. That's one of the reasons I've titled this post the Roller Coaster of Life. The last time I have posted was back in April and it is now September. I have a good four months to catch those of you who read my posts, who aren't my family. ;)

  A lot has happened since my last post, so I will try and start where I left off. Since April I have seen an Immunologist/Allergist and he has put me on some medications for my Dermatographia, which is if you put a certain amount of pressure and slightly scratch my skin it will brake out into hives in those areas. Its really weird but kinda cool cause I can use my fingernail to draw something on my arm and it will stay there for a good twenty minutes. Anyway back to what I was talking about, the medication has helped a lot, they also help with my Mast Cell Activation disorder. That just means that my hystamines in my body flare up at anytime and I have a random allergic reation. The hystamine blockers that they put me have helped tremendously.

  Also since april I have had to see a Hemotologist, aka the blood doctor, to see what has been going on with my ferritn (iron) levels. I have been more tired than usual and for those have read a majorty of my posts know that I get really tired. It was a little odd to me, then I started noticing all of these bruises that I've been getting. I'll bump into something at work and five minutes later I'll have a bruise the size of a quarter on my arm, leg, hand, or any extrimity. I called my PCP (Primary Care Physcian) she didn't do anything about it. She told me it was normal for girls to do that. I didn't agree with her and had a gut feeling that my ferritn or potassium levels were low again. I then called my P.O.T.S specialist and she had me get some lab work done. The lab resuslts came back and everything was normal except for.....that's correct my ferritn levels! They are supposed to be at a level 25 or higher. Mine at the time was 1. I went into my P.O.T.S doctor and she told me that it was normal and i just needed a supplement (which i was already taking) and have more iron in my diet (which I have a very iron and potassium rich diet.)

 So my Supermom (my mom) got me some herbal iron supplement to take. To put it into purspective for you it is a brown liquid that tastes like dirt. Yes, I know what dirt tastes like, I grew up with three older brothers remember. That seemed to be helping but then my dog, who is like 22 lbs (not that heavy), sat on my lap while we went on a Sunday family drive. The next day my legs were literally covered from thigh to ankle in bruises. He's sat on my lap thousands of times before and he's never bruised me before. So we made an appointment with the Hemotologist and they did more labs to see what is going on. They called and once again all of my other labs came back normal except for ferritin. The new supplement bumped me up a whole 2 points. Way to go mom!!

  My doc called me Wednesday saying that I need to get Iron transfusions. It's like getting a blood transfusion but instead of putting blood in my body they are putting iron in it. It's about a 7 hour process. So hopefully that goes well and that it helps me feel better. Fingers crossed.

  My job has been going pretty well. Somtimes its hard to get a lot of time in when I have my doctors apointments. While I am there I work so super hard. Sometimes I over do it at work and then I get home and I feel like I am going to fall into a bunch of little peices lol. I do my best to be a hard worker and I guess it paid off. I recently got a dollar raise. It was really nice to have the reassurance that my boss reconizes how hard I have been working.

  Life has its ups and downs and sometimes its really hard to go through. Like I always think to myself when I feel like I can't handle my hard days and  I want to give up: "With out the bad and bitter days the good days wouldn't be so sweet and happy."

Lesson of the post: BE POSITIVE!!! Always make the best of any and every situation you have to face in life. There is always something to learn form the bad experiances and there is always something to cherish on the good days. I can garuntee you that if you stay as positive as you can you will be so much happier in life. Trust me I know how dang hard it can be to be positive but try your hardest to be. You'll be happy you did.




 

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