Lets play catch up!

A lot has happened since my last post.... A LOT!
  After my Tiffany's photo shoot we took the pictures and we put them on the internet things kind of exploded. Somehow the local news heard about it and what the reason behind it was they contacted my mom and wanted to interview her and I about my story and the festival of trees. They came the day after the photo-shoot and interviewed us and our news story quickly hit the internet and with the help of Dyautonaumia International people with POTS all over the country were soon contacting me and mom about it. We even heard from a few people in AUSTRALIA!!! It was really exciting. My mom has done a lot to help all of these people.



  Since the festival of trees my family and i have done a lot. Thanks to my friends at Tiffany and Company, Julie the director who is amazing, helped me go to my very first University of Utah football game. I went with my brother and I had the time of my life.

My friend Julie who gave us the tickets

Also they Director of Ballet West email my mom and told her that he had seen my story and would love to have my family and me come to their performance of  Firebird. Which was amazing! My mom and I were also invited to come to one of their rehearsals to observe how the dancers prepare for the performance. I met Adam and some of the dancers and I absolutely enjoyed myself. It made me miss dance but I loved every second of it. 

Adam (artistic director of Ballet West) and I

 I have also been able to hold down a job for three months. Which is very exiting for me because of how sick I have been. My cardiologist thinks I could possibly become a little more asymptomatic as I am heading into my twenties. That was a relief for me, but that was for the POTS. I recently went to my allergist to see why i am going into anaphalxis when i am around cigarette smoke (or the remnants of it) and why i have been getting hives with some many things.

 I apparently have mild to moderate asthma, and my lung function is at 64% so when the particals and chemicals of the ciggerette smoke, and it's not just ciggerette smoke it's other things too but ciggerette smoke is what i react to the wost, enter my lungs they close more causing me not to be able to breathe. What i thought of me going into anaphalaxis. For the hives i was diagnosed with a rare skin condition, which I forgot the name of, where is a certain amount of pressure is put on my skin i will break out in hives.

  If its not one thing its anther, but hey when one door closes a window opens. I know how to live with the POTS and now I just have to figure out how to live with these other things Keeping my head up an fight like.... well you know...

  Life is a struggle and I know that God has things happen in life for a reason. We will all figure that out one day and we'll be thankful then if we arent thankful now. Its hard to be humble and gratful when you are going through hard things, but always remeber you have someone who loves you and will be there to pick up the pices of your life when you need them.

Never take these people for granted. They do more for us behind our back than we know and realize. If my mom were to disapper i have no idea how i could continue living functionaly. She is seriously half of me. She dose a lot for me and i would be S.O.L with out her in my life. Keep your loved ones close and treat them they way they deserve not by what kind of mood you are in. This is a lesson I am still learnng,



Todays lesson is that listen to your Docs and parents, they always know best. Also treat them with the respect they desreve and stay as positve that you can be in your situation.

Have a good day!